Lymphoedema
What to expect
A two to four week decongestive block, and what happens to the numbers.
Before you travel
Send the cause where it is known — cancer surgery and which nodes were removed, radiotherapy, infections — the duration of the swelling, photographs, any previous treatment, and your current garment if you have one. A physician replies within 48 hours with the likely block length and what reduction is realistic.
If you are mid-way through cancer treatment, send the oncology plan too. Timing is decided with it, not around it.
The first days
Measurement, skin assessment and the start of bandaging. The limb feels heavier before it feels lighter, and most people find the first two nights in bandages the hardest part of the whole block.
Volume typically starts falling within the first week, which is also when the bandages start needing to be reapplied tighter.
The working weeks
Daily bandaging, drainage, exercise in compression, and skin care. Aquatic sessions where they suit you. Measurements are repeated through the block so you can see the curve rather than only the endpoint.
Reduction is fastest early and flattens. That flattening is normal and it is the point at which the block length is decided — continuing past the plateau adds cost rather than volume.
The last days
Final measurement, garment fitting, and training in the home routine. You leave with your before-and-after figures, a fitted garment, a written routine and a plan for when the garment needs replacing.
You also get a plain statement of what will happen if the maintenance phase is not done, because that is the single largest determinant of whether this was worth the trip.
Sources
- Manual lymphatic drainage for lymphoedema following breast cancer treatment — Cochrane Database of Systematic Reviews (2015)
- Manual lymphatic drainage adds no further volume reduction to Complete Decongestive Therapy on breast cancer-related lymphoedema: a multicentre, randomised, single-blind trial — British Journal of Cancer (2018)
- A systematic review of the evidence for complete decongestive therapy in the treatment of lymphedema — Archives of Physical Medicine and Rehabilitation (2012)
- Lipoedema is not lymphoedema: a review of current literature — International Wound Journal (2018)
- Exploration of Patient Characteristics and Quality of Life in Patients with Lipoedema Using a Survey — Dermatology and Therapy (2018)



